Pride of Britain star Moin Younis has finally been given hope that there maybe a treatment for his agonising skin condition.
Moin, 18 years old was diagnosed with Epidermolysis Bullosa when he was just 2 months old and was told he would not live past one year.
Moin spends five hours a day dressing his blistered skin, struggles to sleep with the pain.
Doctors are looking into whether a ground-breaking skin graft treatment in Europe may help an end to his agony.
Moin has said “Having this treatment would change my life completely, It’s such a big thing. I dreamed about getting treatment like this when I was smaller
It is been said that the treatment will be long and painful, involving regular skin grafts for between six to 12 months, either at the Epidermolysis Bullosa headquarters in Italy or the main treatment centre in Austria.
Younis family have started raising funds for their trip while they wait to hear from the doctors.
The treatment will be a trial and funded but they will need around £250,000 for their flights and accommodation for up to 12 months in Europe.
“It will be a lengthy treatment but it will be worth it,” said Moin, who has two older brothers.
“At least I know something is happening now.
“Before I had nothing to hold onto. I’d just get up, do my skincare and live with it.
“Now the ball’s rolling and I can hold onto this treatment and say there is something out there for me.
“Hope is the most important thing.”
“I’m trying not to think about my treatment too much at the moment because it hasn’t happened and I don’t want to get excited about something that hasn’t happened.”
The treatment was discovered after a boy called Hassan, who lives in Germany, was given a series of life-saving operations to provide him with a new genetically modified skin that covers 80 per cent of his body.
The boy skin was described as being as fragile as butterfly’s wings.
Moin’s mum Shafia said: “Hassan was dying because so much of his skin was ‘burned’ by the condition.
“Now, nearly two years on, he’s playing football, running and walking. He seems to be leading a normal life.
“We’re hoping this treatment can help Moin too.”
The family said if they raise the money and then Moin is unable to have the treatment, they will return the donations or give them to charity.
Moin was named Teenage Child of Courage at Pride of Britain award last year and has been given a lot of support from celebrities over the years including footballers David Beckham and Jermain Defoe.
To donate, or find out more about Moin’s fundraising campaign, visit his website www.mofund.co.uk
